Disease Modifying Therapy

I couldn’t decide if this was better as a page or a post. A post won out. I can always update it, and this way it is always at the almost-beginning of my archives. Win-Win. Originally Started 09-24-2017, Edited & Posted 4-29-2021

This is going to get pretty long. It spans actual years. If you have MS, or suspect MS, I bet your story does too.

On top of MS (multiple sclerosis), I have EDS (ehlers-danlos syndrome), was dx with fibromyalgia (which may have been early-stage MS? It’s such a “I don’t know what’s wrong, here is a label” catch-all diagnosis), suspect I have some mild MCAS (mast cell activation syndrome), and know I have some mild POTS (postural orthostatic tachycardia syndrome) going on. There is more, a whole house full of so-called special needs. We just call them needs.

I’ve always been public. I love social media. I love my imaginary internet friends. My Punky Moms who have been there almost since the beginning of my parenting journey, who have turned into my Tribe. (Don’t talk to me about appropriation of Tribe – I’m Jewish, we all descended from one of the 12 Tribes). Why is that worth mentioning? It means I had a pretty reliable web of sources (my own posts!) to use to pull my story together. I’ll use block quotes to format my posts, the dates listed underneath as the source. For the purposes of this post, the source is always one of my social media channels. Let’s Get Started!