I started this post nearly a year ago in early 2021. I think that sums up my year(s).
I love to write. You have no idea. No, really. Because I never do it here anymore. I don’t even do it on social media anymore. So what’s my excuse? I have none.
2021 is nearly over The first quarter of 2024 is pretty much over and the only thing I think I’ve really done is some (awesome) part time wordpress work while I have been woefully away from my own.
MS has been… an event. I think the last time I even thought about posting here I was still on Tecfidera and it didn’t have a generic yet. Fast Forward please. I’ve been on Kesimpta for three years now (I told you, it’s been a minute) and while I will get into that, I do want to say up front it’s been awesome.
I have no idea of what is going on anymore
Without using my limited social media to remember, I don’t have much to add. Hell, even using it I don’t have much. I really, undeniably, absolutely checked right the fuck out. I exist pretty much in my bedroom. I had hoped to make this site a glimpse into the life of someone with a chronic illness, but the I got depressed by what I was living. It wasn’t covid’s fault exactly, but it didn’t help. I got what I believe was covid in February 2020 on my way home from a funeral up north. Then in March covid broke as news. Then we hibernated for “just two weeks” that turned into a century. Then I started kesimpta, and the only reason for that was my doc didn’t want me sitting in an infusion center for hours. It was Peak Covid, and I thank her for looking out for me. Stuff stuff stuff. Then all of the sudden I get covid every damn time I go somewhere that isn’t Costco (srsly Costco, props for keeping it clean!) or Disney (and I stay outside when we’re at Disney now, I mask up if we go inside, and I don’t touch anything. Ever.) or even the shop (where I also mask up if I’m there during open hours).
DEEP BREATHE
Also, my entire downstairs flooded, it took us forever to get ready to have the mold mitigation/renovations people in (me, it took me forever) and now we’re in a rental for a few months and I really have nothing to do. You know, besides hang with the dogs, take the dogs out, watch the dogs in the yard bc I’m not 100% it’s escape proof, stare longingly at the pool while I watch the dogs not escape, toss in a little work while I’m watching the dogs… you get the picture. My kids are all grown (yep, even the ones who still live with me) and now I have dogs. So all my sites are finally getting a little love while I mull over some work-related conundrums in the back of my head.
So yah! I am going to try and plan some posts, informational and opinion. Maybe both in one shot, who knows, let’s get crazy! If there is anything you specifically want me to gab about in this one-sided conversation that is the blog post, drop me a note! I’m pretty open.